Resource Links

Nova Scotia Health & Support

Family Pharmacare Information

Health & Welfare Initiatives, Programs and Services

Capital Health District Information

Canadian Based

Tumour Foundation of BC
NF Support Line, 1-888-342-4175 open Monday & Tuesday 6-8pm PST

NF Society of Ontario

NF Canada (dissolved, however website has good information)

The Friedman Lab at UBC, Canadian NF Research (that we will support!)

Manitoba Neurofibromatosis Support Group

L’association de la Neurofibromatose du Quebec

Global Based

Children’s Tumour Foundation

John’s Hopkins University, NF Centre

For international referrals

NF Australia

NF Network

Take Part – Database, Registry & Other Important Links

International Schwannomatosis Database

NF Registry @ CTF

NF Network Registry

The National Neurofibromatosis Skin & Mental Health Survey